About Jimmy

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So far Jimmy has created 63 blog entries.

Jimmy Vs. Social Security Administration, Round 2 (Update)

My dilemma with Social Security is so frustrating that it’s become exhausting to even think about. BUT I’m so thankful for the ongoing support from everyone that I want to keep you all in the loop. The Social Security Administration has yet to overturn their decision to terminate my 1619B status, which is a federal [...]

By |2018-08-21T19:44:23+00:00August 21st, 2018|blog|Comments Off on Jimmy Vs. Social Security Administration, Round 2 (Update)

Jimmy vs. Social Security Administration, Round 2

Read about Round 1 here, which occurred just after I landed my job out of college. In ten days, I may be forced to accept society’s definition of “disabled”, a term I’ve been fighting to redefine for my entire life. I have a hearing with the Department of Welfare to reinstate my eligibility for Medicaid, [...]

By |2018-07-21T16:29:15+00:00July 21st, 2018|blog|Comments Off on Jimmy vs. Social Security Administration, Round 2

The Power of Words/ Why I Love to Write

People often say when one of the five senses is compromised, another is heightened to compensate for the deficiency. Well, I know physical strength is not one of the five senses, but I do believe my ability to use words is better than average to compensate for my physical limitations, in the same sense. Since [...]

By |2018-07-16T02:30:29+00:00July 16th, 2018|blog|Comments Off on The Power of Words/ Why I Love to Write

My Speech for the Muscles for McKenna Gala Benefiting CureSMA

On Friday night, I gave this speech at the Muscles for McKenna Gala raising money for Spinal Muscular Atrophy: Hi, My name is Jimmy, and I have SMA. I know most people here are already familiar with the disease and its debilitating effects, so I don’t want to speak on the negative aspects of my [...]

By |2018-03-12T19:06:03+00:00March 12th, 2018|blog|Comments Off on My Speech for the Muscles for McKenna Gala Benefiting CureSMA

#2017Best9

With 2017 in the rear view, I’m extremely grateful that I can say it was an amazing year, many thanks to so many of you. I cannot express how grateful I am for the support and positive feedback I’ve received about my new children’s book, Will the One-Winged-Eagle. With each entrepreneurial endeavor I pursue, I [...]

By |2018-01-01T19:19:20+00:00January 1st, 2018|blog|Comments Off on #2017Best9

Melissa Shang and Creating a New Genre of Stories

Meet Melissa Shang, a middle schooler with a dream. Born with Charcot-Marie-Tooth, a form of muscular dystrophy, Melissa dreamed of writing a children’s story like one she had never read before. She wanted to write a story about a relatable character, but not just one with a disability. She wanted to write a story about [...]

By |2017-12-27T20:05:26+00:00December 27th, 2017|blog|Comments Off on Melissa Shang and Creating a New Genre of Stories

How Will the One-Winged Eagle was Conceived

About a month ago, I announced the birth of Will the One-Winged Eagle, my brand new children’s book; however, I never elaborated on how exactly Will was conceived. Well, I think it’s time we have that talk. The truth is that Will was actually created a little over a year ago, in text that is. [...]

By |2018-07-21T22:46:33+00:00December 17th, 2017|blog|Comments Off on How Will the One-Winged Eagle was Conceived

Pt. 2: When an Article Becomes Real

I'm not as much of a skeptic as our president to say that I thought the first articles I read about Spinraza were "fake news", but I certainly took what I read with a grain of salt. The articles I came across didn't speak much to the impact of the drug, only that it was [...]

By |2018-07-21T22:48:16+00:00August 30th, 2017|blog|Comments Off on Pt. 2: When an Article Becomes Real