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People often say when one of the five senses is compromised, another is heightened to compensate for the deficiency. Well, I know physical strength is not one of the five senses, but I do believe my ability to use words is better than average to compensate for my physical limitations, in the same sense. Since [...]
On Friday night, I gave this speech at the Muscles for McKenna Gala raising money for Spinal Muscular Atrophy: Hi, My name is Jimmy, and I have SMA. I know most people here are already familiar with the disease and its debilitating effects, so I don’t want to speak on the negative aspects of my [...]
Yesterday I had the great pleasure to return to my elementary school to share my new book with the third grade class. What may come as a surprise, though, is that I was SUPER nervous to speak in front of 100+ kids. While I felt confident that they would like the story, I was unsure [...]
Meet Melissa Shang, a middle schooler with a dream. Born with Charcot-Marie-Tooth, a form of muscular dystrophy, Melissa dreamed of writing a children’s story like one she had never read before. She wanted to write a story about a relatable character, but not just one with a disability. She wanted to write a story about [...]
I'm not as much of a skeptic as our president to say that I thought the first articles I read about Spinraza were "fake news", but I certainly took what I read with a grain of salt. The articles I came across didn't speak much to the impact of the drug, only that it was [...]
The first time I ever heard of Spinraza it was just a regular day at work. I stumbled upon an article about the first ever FDA-approved treatment for my disability perusing health care related publications, a daily ritual of mine as a Market Research Analyst at a health insurance company. Spinraza quickly became a hot [...]
Last week I went with a friend to TGI Friday's. Our intention was to sit on the balcony overlooking the Parkway, but it wasn't open due to a light drizzle. Nevertheless, the food would still be hot and the drinks cold, so we got a table inside. As my friend and I discussed the food [...]
You may or may not be wondering where I've been. Well, I've been on the go, many thanks to Uber's recent rollout of wheelchair accessible vehicles in Philly. Uber's timing was actually perfect. My van was totaled in a hit-and-run two weeks ago. It was an unfortunate event, but thankfully no one was injured, at [...]
One of many things I have learned throughout my career, is that the best thing you can do with any notoriety or 'celebrity' that one may attain in life is to use it to help others. Around 2007 I was riding a huge wave of attention for my work. Around that same time, my good [...]
Being a 3' 1" tall guy in a wheelchair definitely has its advantages in the music business. I never blended into the crowd of countless up and coming music producers. It was advantageous in garnering attention when bringing down the house in a beat listening seminar on South Beach in Miami, signing with Timbaland, being [...]
