The Power of Words/ Why I Love to Write

People often say when one of the five senses is compromised, another is heightened to compensate for the deficiency. Well, I know physical strength is not one of the five senses, but I do believe my ability to use words is better than average to compensate for my physical limitations, in the same sense. Since [...]

By |2018-07-16T02:30:29+00:00July 16th, 2018|blog|Comments Off on The Power of Words/ Why I Love to Write

My Speech for the Muscles for McKenna Gala Benefiting CureSMA

On Friday night, I gave this speech at the Muscles for McKenna Gala raising money for Spinal Muscular Atrophy: Hi, My name is Jimmy, and I have SMA. I know most people here are already familiar with the disease and its debilitating effects, so I don’t want to speak on the negative aspects of my [...]

By |2018-03-12T19:06:03+00:00March 12th, 2018|blog|Comments Off on My Speech for the Muscles for McKenna Gala Benefiting CureSMA

Melissa Shang and Creating a New Genre of Stories

Meet Melissa Shang, a middle schooler with a dream. Born with Charcot-Marie-Tooth, a form of muscular dystrophy, Melissa dreamed of writing a children’s story like one she had never read before. She wanted to write a story about a relatable character, but not just one with a disability. She wanted to write a story about [...]

By |2017-12-27T20:05:26+00:00December 27th, 2017|blog|Comments Off on Melissa Shang and Creating a New Genre of Stories

Pt. 2: When an Article Becomes Real

I'm not as much of a skeptic as our president to say that I thought the first articles I read about Spinraza were "fake news", but I certainly took what I read with a grain of salt. The articles I came across didn't speak much to the impact of the drug, only that it was [...]

By |2018-07-21T22:48:16+00:00August 30th, 2017|blog|Comments Off on Pt. 2: When an Article Becomes Real

Pt. 1: Stumbling Upon Spinraza

The first time I ever heard of Spinraza it was just a regular day at work. I stumbled upon an article about the first ever FDA-approved treatment for my disability perusing health care related publications, a daily ritual of mine as a Market Research Analyst at a health insurance company. Spinraza quickly became a hot [...]

By |2018-07-21T22:52:28+00:00August 28th, 2017|blog|Comments Off on Pt. 1: Stumbling Upon Spinraza

$3 Mojitos for All

Last week I went with a friend to TGI Friday's. Our intention was to sit on the balcony overlooking the Parkway, but it wasn't open due to a light drizzle. Nevertheless, the food would still be hot and the drinks cold, so we got a table inside. As my friend and I discussed the food [...]

By |2018-07-21T22:56:30+00:00August 23rd, 2017|blog|Comments Off on $3 Mojitos for All

Uber Saves the Day

You may or may not be wondering where I've been. Well, I've been on the go, many thanks to Uber's recent rollout of wheelchair accessible vehicles in Philly. Uber's timing was actually perfect. My van was totaled in a hit-and-run two weeks ago. It was an unfortunate event, but thankfully no one was injured, at [...]

By |2018-07-21T22:57:53+00:00August 14th, 2017|blog|Comments Off on Uber Saves the Day

Simon Illa: Adversity in The Music Business

Being a 3' 1" tall guy in a wheelchair definitely has its advantages in the music business.  I never blended into the crowd of countless up and coming music producers.  It was advantageous in garnering attention when bringing down the house in a beat listening seminar on South Beach in Miami, signing with Timbaland, being [...]

By |2017-03-10T00:14:27+00:00May 9th, 2016|blog|Comments Off on Simon Illa: Adversity in The Music Business