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My dilemma with Social Security is so frustrating that itās become exhausting to even think about. BUT Iām so thankful for the ongoing support from everyone that I want to keep you all in the loop. The Social Security Administration has yet to overturn their decision to terminate my 1619B status, which is a federal [...]
Read about Round 1 here, which occurred just after I landed my job out of college. In ten days, I may be forced to accept societyās definition of ādisabledā, a term Iāve been fighting to redefine for my entire life. I have a hearing with the Department of Welfare to reinstate my eligibility for Medicaid, [...]
People often say when one of the five senses is compromised, another is heightened to compensate for the deficiency. Well, I know physical strength is not one of the five senses, but I do believe my ability to use words is better than average to compensate for my physical limitations, in the same sense. Since [...]
On Friday night, I gave this speech at the Muscles for McKenna Gala raising money for Spinal Muscular Atrophy: Hi, My name is Jimmy, and I have SMA. I know most people here are already familiar with the disease and its debilitating effects, so I donāt want to speak on the negative aspects of my [...]
Yesterday I had the great pleasure to return to my elementary school to share my new book with the third grade class. What may come as a surprise, though, is that I was SUPER nervous to speak in front of 100+ kids. While I felt confident that they would like the story, I was unsure [...]
With 2017 in the rear view, Iām extremely grateful that I can say it was an amazing year, many thanks to so many of you. I cannot express how grateful I am for the support and positive feedback Iāve received about my new childrenās book, Will the One-Winged-Eagle. With each entrepreneurial endeavor I pursue, I [...]
Meet Melissa Shang, a middle schooler with a dream. Born with Charcot-Marie-Tooth, a form of muscular dystrophy, Melissa dreamed of writing a childrenās story like one she had never read before. She wanted to write a story about a relatable character, but not just one with a disability. She wanted to write a story about [...]
About a month ago, I announced the birth of Will the One-Winged Eagle, my brand new childrenās book; however, I never elaborated on how exactly Will was conceived. Well, I think itās time we have that talk. The truth is that Will was actually created a little over a year ago, in text that is. [...]
I'm not as much of a skeptic as our president to say that I thought the first articles I read about Spinraza were "fake news", but I certainly took what I read with a grain of salt. The articles I came across didn't speak much to the impact of the drug, only that it was [...]
The first time I ever heard of Spinraza it was just a regular day at work. I stumbled upon an article about the first ever FDA-approved treatment for my disability perusing health care related publications, a daily ritual of mine as a Market Research Analyst at a health insurance company. Spinraza quickly became a hot [...]
